I began this site, not 5 minutes ago, due to the increasing awareness of Rolfe Syndrome in the hopes of spreading information about this severe affliction. I was diagnosed at an early age, however it was a relatively unknown condition that required years of clinical trials with poking and prodding with various shaped probes.

One of the unfortunate side-effects, of those diagnosed, is the rolfism. With a wealth of information at my disposal, over time, I will endeavour to explain, in layman’s terms, the societal hurdles experienced by myself, and people like me. As this is currently the only source of information for Rolfe Syndrome sufferers on the Internet, I will continue to keep everyone abreast of any new scientific discoveries, treatments and little red pills.

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